DIPG

Thoughts of a 14-year-old

2018-01-07T21:43:06+00:00

Thoughts of a 14-year-old living with cancer Blog post - August 23, 2014 Yesterday, Erin appeared to have given up. She told me to take her to the hospital to put a catheter put in and give her drugs so she never has to get up again. What does a mum say to that? Well, this mum here "lost the plot". Instead of trying to offer [...]

Thoughts of a 14-year-old2018-01-07T21:43:06+00:00

Life Sentence

2017-06-21T01:12:18+00:00

Life Sentence 13-year-old Australian Erin Griffin is PRAYING that she receives a life sentence even though she’s committed no crime. Why? Because LIFE is better than the alternative. Please follow Erin’s journey wth DIPG, a very aggressive form of brain cancer, at Erin Griffin Raising Childhood Cancer Awareness P.S. Erin is part of a promising trial that has resulted in a 15% decrease in the size of her tumor. P.S.S. [...]

Life Sentence2017-06-21T01:12:18+00:00

The Worst Days

2017-05-11T17:12:02+00:00

The Worst Days So Far August 20, 2014 Erin has experienced the worst few days of her life recently. She has been overly sedated and detests how this feels. Erin hates both the 'Seizure Feeling' and the 'Sedated Feeling" It is horrendous for her, it needs to be resolved now. Erin will no longer be given Midazolam for her seizures. It is likely her long [...]

The Worst Days2017-05-11T17:12:02+00:00

An only son

2019-02-13T22:26:58+00:00

An Only Son I am not just anyone I am the friendly one Perhaps not the chosen one But sadly now an only son I asked a friend, what has become My life now feels forever glum Back to being an only son Very close to being done The pain is here, with no more fun Some people say, what's done is done That's what makes my stomach churn [...]

An only son2019-02-13T22:26:58+00:00

The Beginning

2017-11-15T12:07:33+00:00

The Beginning When I was 11, I started getting headaches and vomiting. I thought it would just go away in time but it didn’t. People just said it’s probably just my hormones because of my age and that I’m a girl. But it got worse so I went to a doctor and he gave me painkillers that didn’t work. When I went to the doctor again, I got a [...]

The Beginning2017-11-15T12:07:33+00:00

My gift of life

2018-01-07T21:46:56+00:00

I took everything for granted - My gift of life From the first glimpse of our newly born child, we are engulfed with overwhelming adoration for our new baby, our gift of life. Parenthood consumes us with unconditional love beyond anything we could ever imagine and a powerful instinct to protect our children from harm. We do all and everything possible to keep our babies safe at all costs. [...]

My gift of life2018-01-07T21:46:56+00:00